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Old 03-10-2010, 03:22 AM
abatie abatie is offline
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Join Date: Oct 2009
Posts: 236
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Thanks Missy!!! We had our first appointment today (of this week) and it was great. The doctor we saw today determined that there are no other vascular issues/syndromes besides the CMTC. Unfortunately he doesn't know enough about CMTC to tell use what is associated or not. We aren't going to get to see her primary CMTC doctor this visit. They cancelled the GI specialist because she is doing so much better with feeding. I am frustrated in that he didn't seem very supportive of her getting support therapy. I am not really sure why. Hopefully the PM&R specialist on Monday will be more supportive. He also thought it was important for her to have the hearing screening because he saw the inconsistency. I thankful for the response from the expert. It confirms what I am seeing. So frustrating.
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