PWS to entire right arm/right chest...anyone else????
Hello..I am new to this group. I have a 1 month old who has a pws and was just looking for some reassurance. We have found a great dermatologist and she is starting laser surgery on our son next month. She said the sooner the better. I trust her very much. She also told me that she would be able to get rid of a majority of the pws except for his hand/lower arm. I was wondering what everyone else's experience was with the hand/lower arm. I am a little sad about this b/c I want him to be just like everyone else. I guess you can say that I am still trying to come to terms with all of this. I know I should be thankful that nothing is seriously wrong with him, but it just hurts my heart sometimes when I look at it. It's just so big. Thank you for any advice/help you can give me.