HI I am from Australia and my little girl has a cystic hygroma (lymphatic Malformation) in her leg too hers is in her pelvis thigh and vagina it is a huge mass that is purely macrocystic and she has receieved 4 lots of sclerotherapy which have not worked. We are now undergoing more tests as she has become incontinent and has lymphodema back again
As far as I was aware we are the only ones with it in the lower limbs
please to meet you