Vascular Birthmarks Foundation Forum - View Single Post - Parkes Weber Syndrome - Micro fistula
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Old 08-13-2010, 02:00 PM
fammie fammie is offline
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Join Date: Aug 2010
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Hi I have sent her files to specialist in US, CANADA and UK. They have advised me they will get back to me. They advised me the laser will damaged the small veins and the embolization only works if there is a big artery. Her hand, shoulder and fingers are all full of small veins which are very hot and big.
My husband is convinced that there is nothing we can do and she has to live with it until a treatment is founded. I am not convinced and hoping to find a similar case who has found the treatment.
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