keep searching and doing your research. E-mail doctors around the world directly and ask for their opinion. ask everyone you know to ask everyone they know. our daughter was diagnoised with a KHE at 12 weeks of age. she is now 20 months old. she has had weekly vincristine and daily steroids with variations to the doses here and there.
so far, i have found out that there is no magic quick fix answer. everyone tells me it will take a long time, probably years... maybe 4 if we're lucky.
in the meantime, we just try to enjoy her as though everything was normal.
good luck. i'm happy to chat if you like.