Vascular Birthmarks Foundation Forum - View Single Post - Just Diagnosed- lots of questions
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Old 09-16-2010, 01:58 PM
cbasser cbasser is offline
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Join Date: Sep 2010
Posts: 12
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I wonder why it was so easy for me to get my diagnosis? I just worry that they will miss something because they don't know what to look for. Basically I told them, "this is what I think he has," and they left the room for 15 minutes to look on the internet and said, "yep, we think you're right." I'm concerned about heart problems. My baby sleeps for hours and hours. Sometimes 16 hours straight, without eating. He's growing well so they aren't concerned. I'm so glad I found this website! Please keep posting on your daughter's progress. I think the hardest part is not knowing how this will affect them as they grow.
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