i was compelled to write because i too have a daughter (16mths old) who was dignosed with LM macro initially on her Left neck. Now through MRI's, the cyst remains large deep down her chest bone. i am so worried and seeking medical interventional radiologist either locally or in Japan. I've done research and theres so many mixed reviews....have you heard of percutaneous embolization?
you and your family are so brave....i'll be praying for your strength and your son's courage....god bless..