Vascular Birthmarks Foundation Forum - View Single Post - My life with my PWS
View Single Post
  #3  
Old 11-12-2010, 01:14 AM
kaykay kaykay is offline
Senior Member
 
Join Date: May 2006
Posts: 233
Default

wow. you just described my exact birthmark except my PWS extends to my scalp.

Yes radomn bleeding happens sometimes. i kinda dribble when i talk for a while. kinda embrassing.

If i am doing something very phyically demanding in the sun i can feel my birthmark pounding but yes the heat does affect it.

I try to take it one day at a time an not think about it too much. denial can work great sometimes LOL
Reply With Quote