Vascular Birthmarks Foundation Forum - View Single Post - Lympangioma in leg
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Old 11-13-2010, 06:21 AM
sweet pea sweet pea is offline
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Join Date: Jul 2006
Location: Southern California
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Try not to stress too much, you need to take care of your unborn baby, too. If the lymphatic malformation takes up a lot of his thigh, there are ways of "filling it in" with tissue or something. There are some talented surgeons these days. I know they've used muscle from my leg to fill in the area where my lymphatic malformation was removed. The muscle died(supposed to do that) and filled in the area to make it look ok. I see a pediatric plastic surgeon myself(at age 21).

I looked up to see what specialist is in Washington and found one.
Jonathan Perkins, MD
4800 Sandpoint Way
Seattle, WA 98105
206-987-3468 or 2105
D irector of a multi-disciplinary team dedicated to the treatment of vascular anomalies.
Don't know your exact location, but you might be able to see him. ?

It's a rare condition, so not every doctor will know what it is. And some might claim to know what it is, too, but actually don't. That's why it's important to make sure they have experience with treating the condition, so they know what to expect and how to deal with it specifically. Macro-cystic refers to the size of the pocket of lymphatic vessels. If the lymphatic pocket is one larger one or a couple larger ones, then it's considered macro-cystic. Since they are bigger, it's easier to inject them with sclerosing chemicals to shrink it. If they are small, then they would be considered micro-cystic and are a bit harder to treat. From the pictures, it is cavernous. Though cavernous can be either one, micro or macro. They can only figure out which type by the MRI.
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