Vascular Birthmarks Foundation Forum - View Single Post - BORN WITH GIANT HAIRY NEVUS, now living with huge scars..:(
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Old 12-12-2010, 02:19 AM
momof3inpa2009 momof3inpa2009 is offline
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Join Date: Dec 2009
Location: PA USA
Posts: 110
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You said the perfect words: "I know all this stuff." People can give you advice after advice, advice I'm sure you already know you should be doing and you probably wish you could but you can't help how you feel. I guess all you can do is find a way somehow to come to terms with what you are living with. And nobody can tell you how to do that, that is something you have to figure out on your own. Vent...vent as much as you like, I'm sure friends and family and even strangers will listen.
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Deep hemangioma on left eyebrow towards nose
Started propanolol Feb. 11th, 2010
Off of propanolol aprox. June 2011
Takes 3 doses per day at 1.3ml
2nd Weaning of prop. not a success back on it March 22. Only one dose of 1.3ml now Baby girl is 19 months old Did Timolol gel for awhile, stopped, & back on - 4 years old. Off of Timolol -doesn't seem to be doing anything. At this point we have surgery scheduled for April
http://lexihemangiomapropanolol.blog...roduction.html
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