I am not sure if it is too late to reply to your message. I know it has been some time since you posted this, but my son is 13 now and has a facial AVM. His has been there his whole life and he has had MANY surgeries. We are taking him for more reconstructive surgery next month. We live in Richmond Va and his surgeon is Dr Suen in Little Rock. It is a very tough age and I totally understand what you and your son are going through. It is the same situation for us. He feels like he is the only one. Thank goodness he has male cousins his age, because they are his only close "friends". You can e-mail me anytime.
Monica Longood~Ryan's mom