Our 4 month old baby girl is also going to be starting treatment with Prof Tan for an ulcerating haemangioma on her chin. We are going on the captopril trial, but don't think there are too many others on it. Hope all goes well with the propanolol - my neice has had it and her birthmark on her nose has improved hugely. Professor Tan is amazing and it sounds as though we are in great hands. Bit of a worry that your paediatrician was going to prescribe you propanolol though without monitoring in hospital, as this is a medication used to slow the heart rate and decrease blood pressure.
Last edited by catherine : 02-24-2011 at 08:53 AM.