My son's PWS & complications
Appreciate this site. My 20 yr old son was born with a Portwine Stain b-mark .Covers left eyelid,forehead and l-side of nose. He's never wanted it removed.Accepts it.Also has pws on 1/2 of his penis.On 12-15 he was involved in a atc accident: lots of fractures ect. Started bleeding internally on 1-4 lost over half of his blood.Tests showed no "open" bleeding.Surgery was preformed 1-8, and a PWS was found on lower intestine,and that section was removed.This is all new to us never any problems before.Anyone else ever experienced "internal complications?
Sign me"scared mom"