One thing is that the only children that *I* know who go through treatments like that have Sturge Weber Syndrome. Sturge Weber is a syndrome that includes port wine stain and either glaucoma OR seizures. One of the difficulties of SWS is that it can come with learning disabilities.
Ask some of the experts, though, if they can point you toward MORE research. http://birthmark.org/experts.php
Dr. Nelson and Dr. Comi would be two goods ones to ask if they can steer you toward any new research.
Let us know if you find out any more.