Vascular Birthmarks Foundation Forum - View Single Post - Lower Lip Hemangioma
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Old 06-12-2011, 06:19 PM
zsaZsa zsaZsa is offline
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Join Date: Jun 2011
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Quote:
Originally Posted by ahonerlaw22 View Post
Hi All,

I'm new here, been a lurker for awhile. My 7 1/2 month old daugther has a hemangioma on her lower lip. Luckily, it has not ulcerated or grown. We've seen a specialist at Childrens and they recommend the old "wait and see" approach. They said that Propranolol, Timolol, laser or steroid injection would not really work for her since her H has stabilized. They said surgical excision is the only real option and they don't want to do that because of scarring. So, basically, we've been told to "get through it" and "wait it out, it will eventually go away".

I guess I'm just frustrated. I know that her H isn't that bad but it is still on her mouth and very visible. Not a day goes by that someone doesn't ask what happened to her lip. Soo annoying.

I guess I just wanted to vent a bit. I've attached a pic of her H.

I have noticed though that it isn't as red and the borders seem "softer". Does that indicate involution may be starting?
hi . i know how you feel i have the same issue. and the question are so dumb i had some one ask me did she fall weren't you watching her , of course i was . it hurts to think people are not educated enough before they ask questions. i will send you picture of then and now . and to be honest I have a beautiful tale because of all this, i was afraid to breast feed was very careful with the bottle . i blame myself and my husband left me , i didnt have anyone to guide or help me except my family. my mother who catholic suggested a healing mass which i attended GOD help me i mean literally the next day the mark started to cover up with white patches it started to close and day by day it look better and better she just turn two and you can hardly see it . i also thank the doctors who also help they have written books on hermangioma and volunteer there services for the unfortunate . please email me if you have any other question im from long island , new york
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