Vascular Birthmarks Foundation Forum - View Single Post - Heart Problems and CMTC
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Old 07-31-2011, 12:36 AM
abatie abatie is offline
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Join Date: Oct 2009
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Just an update on CMTC and heart issues. In July I received a Facebook post from Lex (the CMTC expert from the Netherlands) and he had never heard of a case of CMTC and heart issues. He wanted us to come in July for an evaluation by his team but unfortunately when they were in the US was just a couple of days after I got out of the hospital. I do think that she needs to be evaluated by their team because there are all these odd things with Becca that just keep happening but that don't add up. At this point I guess we will have to wait until next summer and then see if we can still go and have her evaluated (I believe they come each summer.).
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