Vascular Birthmarks Foundation Forum - View Single Post - My newborn has CMTC, now what?
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Old 09-05-2011, 08:56 PM
abatie abatie is offline
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Join Date: Oct 2009
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First take a deep breath and know all will be okay. CMTC is about managing as things come up. First get the referral for the pediatric dermatologist (although I would ask before the appointment if they know what CMTC is). There is nothing more frustrating than doctors who need to be educated. By about six months I would be looking to get a glaucoma test done and I would do that each year (some doctors will tell you it isn't needed if CMTC isn't on the face but the parents I have been in contact with all test yearly). Monitor for temp changes and keep track. Watch for size differences between the affected and unaffected limb. I watched how the specialists measure and I also keep track at home on my own. Also it is important to get a thyroid test. If you would like to e-mail me feel free.
abatie
thebaties@valleytel.net
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