I actually check twice per day, but was waiting for abatie to post! Because, by far, she knows much more than I about this, or most anyone else.
Congratulations on your new baby!!! He's beautiful! I know how it is when you find out your baby has something that he will have to deal with his whole life and how that can suck the energy and time right out of you. It just takes your wind away, doesn't it? Make a point to turn the computer off for a while and spend some precious time with Grayson. That's all he really needs right now.
Has your referral come through? And, where, generally, are you located? Perhaps we can find someone who does already have some knowledge about CMTC. You know, someone that abatie has already educated!! LOL!!