Vascular Birthmarks Foundation Forum - View Single Post - My 6 week old just diagnosed with a Hemangioma
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Old 11-17-2011, 03:27 AM
smurph smurph is offline
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Join Date: Jan 2007
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Hi! I was just reading your post and I got goosebumps because it reminded me of my first post here about 6 years ago. My daughter has an upper lip hemangioma too. All I can say is you have come to the right place for information and support! This website has been such an amazing resource for me over the years.

I agree with Missy. I think the best thing to do is to see a vascular birthmark specialist even if it doesn't seem to be growing right now. That way you can have a specialist monitoring it from early on and you can get more information of your options. There's definitely the possibility that it will be totally fine and it will go away on its own, but lips can also be very tricky...trickier than other locations for hemangiomas and that's why I think a specialist's opinion is important.

Our pediatrician said the same thing to us, and within a few weeks our daughter's hemangioma ulcerated. Her pedi. just kept insisting that the hemangioma would not hurt her and to just put vaseline on it. Can you imagine how horrified we were when we did see a specialist and found out that our daughter's lip was ulcerated and she was screaming from pain, not from colic!!!! She ended up having surgery last year to correct the scarring from the ulceration. In my opinion there seems to be a disconnect out there between the pediatricians and specialists, especially for the hemangiomas that are more likely to warrant treatment.

I don't want to alarm you though...even though we had a couple bumps in the road, my daughter is doing so great now! You can barely tell she even has a hemangioma. One of my other daughters has a hemangioma too...hers needed no treatment at all and is almost totally gone (she is 2) so it is possible!

I think the most important things are go see a specialist, email one of the expert doctors here to get their opinion, and then do what you think is best...wait it out, treat....there is really no right or wrong answer.

And most importantly, try to stop googling!!!! ha! ha! I'm laughing because I did the same exact thing myself. I think as mothers, we want to find out everything that we can, but we end up scaring the heck out of ourselves with worst-case scenario pictures you find on the internet!!! If you want, I can send you some pictures of my daughter. They are not "worst case scenario" pictures...kind of middle of the road. Just let me know!

Please post a picture if you can...send it to Missy...she's the queen of picture posting! Hang in there. There is hope! I survived and you guys will too! Sending a hug your way!

Shannon
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