Vascular Birthmarks Foundation Forum - View Single Post - Ulcerated hemangioma near rectum and underside of scrotum (3 week old infant)
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Old 03-04-2012, 01:38 PM
spaatz1329 spaatz1329 is offline
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Join Date: Jun 2011
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My daughter has PELVIS Syndrome and we really struggle to keep the hemangioma around her anus from tearing open. We have both metrogel and desonide to help and she takes miralax every day to keep her stools really soft (she is 9mo now so solid foods have firmed them up a lot). Good luck with the specialist, these things can cause major internal issues so a full workup is essential.
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Jamie
Ellie- born 5/24/11
Forehead Hemangioma, Finger Tip Hemangioma
Large Diaper Area Hemangioma w/ PELVIS Syndrome
Tethered Spinal Cord, Bladder Exstrophy/Cloacal Anomoly
Diagnosed with Rhabdomyosarcoma 3/19 begins 46 week Chemotherapy treatment 4/9
On Propanol 1.4mL/3 times daily
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