i have avm's in my left arm. i have had one surgery already and countless dr visits and tests. the pain in my arm is becoming unbearable and it is affecting my use of the arm. i go to physical therapy to help regain the strength but it doesnt seem to help. i recently moved to mn from las vegas and i am having the hardest time finding a doctor who knows anything about avm's. nobody seems to understand the pain it causes.
i guess i just need someone to talk to who understands these things.