The Childrens Hospital of the Kings Daughter in Norfolk, VA has some knowledgeable doctors of the condition, but the Drs. I know are otolaryngologists and are treating mostly head and neck. My daughter was treated with OK-432 by Dr. Derkay at this hospital
I highly recommend Dr. Shiels at Nationwide Childrens Hospital, Ohio. He is currently my daughter's Interventional Radiologists and he treats LM's on all parts of the body and is the most successful I know and his results are published. He has successfully treated my daughters neck. He will speak with you by phone for a second opinion.