European AVM Survivors
Hi, I suggest you join AVMSurvivors.org -- there is a sub-group there for Scandinavian AVM survivors where you can get some practical support for dealing with your health care system. I am sorry your doctors have not understood the pain you are experiencing; scientific articles often fail to convey just how painful VMs can be. Patients are the real authority on that subject, as you know too well. Best wishes!