Hello, havefaith. I have a couple of articles I can send you about Rapamycin. Also, I know one or two people who are taking it at AVMSurvivors.org If you join AVMSurvivors, I can put you in touch with them.
I highly recommend the site -- there are over 500 members there with Extremity AVMs, and information sharing can be very helpful. It made all the difference in my son's case; he is now AVM free.
Do you mind if I ask which doctor is recommending Rapamycin? I like to keep tabs on which AVM docs are trying different drugs.