Vascular Birthmarks Foundation Forum - View Single Post - Treatment Advice
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Old 09-13-2012, 10:35 PM
tinsea1 tinsea1 is offline
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Join Date: Sep 2012
Posts: 3
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thanks! sorry you are also going thru this. we are starting to experience some sleeplessness and i think nite terrors...which i attribute to the propranolol I don't want to take her off of it bc i am sure it stopped the growth i guess i expected it to shrink it as well. i just want to have all the information that i can....
i am going to check out other options and maybe i just need to be more patient. i will ask about Nadolol...
i would also like a biopsy to see if it is a NICH (non inviluting (spelling??) or one that will not go away on its own.
there seems to be way more knowledge in the States regarding treatment.
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