Vascular Birthmarks Foundation Forum - View Single Post - Ulcerated hemangioma near rectum and underside of scrotum (3 week old infant)
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Old 10-31-2012, 12:17 AM
TKoch21528 TKoch21528 is offline
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Join Date: Feb 2012
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Quote:
Originally Posted by emclean View Post
TKosh,
I would love to hear an update! I am abatie's friend who recommended Dr Rico. I'm so glad you received good care. Let us know how your little one is doing

Hi everyone! It's been a while since I checked out this forum. The baby is 9 months old now -- and such a HAPPY baby. He rarely cries, has 5 teeth, is crawling (but not babbling yet).

His ulcerated hemangiomas cleared up nicely on Propanolol and the various ointments. He has a scar from the one ulcerated area near his anus, but the redness disappeared over time, being replaced with just a smooth flat dark stained areas.

As he gained weight, and they tried to increase his dose to maintain a therapeutic level, he wasn't tolerating it very well, so they decided to keep him on his regular dose and let it taper off on its own (as he gained weight).

He hasn't been on medication for several months, without recurring until last week when he started running his first high fever at 103 (ear infection and bronchitis). The redness returned (but no ulcerations). So we scheduled a return visit back to Orlando for next week (Dr. Tace is on maternity leave and available ONE day next week). It's a long drive for a baby in a car seat, but we were ready to go!

TODAY his fever is gone, and miraculously, so is the redness of his hemangioma! What's up with that? Is it because it's a vascular lesion that the redness returned? There's no indication that it was even there. His skin is back to normal (his normal). Anybody heard of that before?
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