Vascular Birthmarks Foundation Forum - View Single Post - Fatty Arm
Thread: Fatty Arm
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Old 02-06-2013, 11:01 AM
dancermom dancermom is offline
Join Date: Jun 2012
Posts: 44
Default UK group on AVM survivors

Hi, there is a UK group on that you may wish to join. There are other members who have arm avms on that group; perhaps you can get some doctor recommendations. There are over 75 members with arm avms on the website from all over the world.

Your condition sounds like Parkes - Weber Syndrome, which is caused by a mutation in the RASA1 gene ( PWS may be a spontaneous mutation, but can be inherited.
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