Hi there! I just wanted to add that it looks pretty similar to my daughter's hand/wrist hemangioma in terms of the "splotchy-ness" but as my daughter got older it filled in and got more raised. It probably was at its darkest/most raised at about 6-7 months then got splotchy again when it involuted. I think you have the right idea to go see a specialist to see what they think. That way they can keep their eyes out for ulcerations, etc. and let you know what your options are in terms of treatment. I am not a PHACES expert, but I think the hemangioma is usually on the head or neck area. I could be wrong but that is my understanding. You could certainly ask about it, but I would try not to worry about that at this point. It's so hard at the stage you're at because there are so many unanswered questions: how big will it grow? will she need treatment? what kind? how long will it take to go away? will she have any complications? You are doing the best thing by going to a specialist and researching as much as you can. Soon some of your questions will be answered in time and hopefully you will start to feel better. At least that's how I felt when I went through it 2 times!! Keep us posted!
VBF Hemangioma Forum Moderator