Vascular Birthmarks Foundation Forum - View Single Post - 37 yr. old with KTWS and now a mystery autoimmune disease/disorder
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Old 11-21-2013, 08:37 PM
Sarawthanh Sarawthanh is offline
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Join Date: Nov 2013
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No answers yet, the Drs are just working on managing the symptoms at this point which unfortunately might be all they can ever do if the autoimmune disease/disorder is never identified,but I think the odd edema might be lymphedema,he's gonna talk to his general surgeon about it. As I said the plan is to go to NIH and just trying to get in there is a tedious process and he might not even get in for six months. Thank you for responding
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