Originally Posted by Dawn and Baby Presley
WOW we are on the Propranolol treatment as well...where do you live?
We are in New Brunswick Canada, and there are only two patients in the whole province on it us and one other little boy!
I mentioned it back a month ago on this site hoping also to help someone!!
Hi i am now 46 years old and honestly nothing was ever seen like it here in New Brunswick. Dr Tan had sent me for numerous categorizations to try and stop the cycle of constant retains blood and swelling. I lived well into my teens with it and then it got to the point where it was either going to go to the tip of my tongue and dissapear or down my throat into my organs luckily I am still here.