Vascular Birthmarks Foundation Forum - View Single Post - new to the boards!
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Old 04-26-2004, 09:30 PM
eprmo eprmo is offline
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Join Date: Dec 2003
Posts: 149
Default Re:new to the boards!

hi,

welcome,,,
my daughter is 14. and she is currently scheduled for surgery on her H...how was it for you growing up with a PWS?? Where is it located?? My daughter is fine with her H., but just abit annoyed at times. Hers is located on her nose.....She started laser tx's on it when she was 11...and then another when she was 12 & 13....(only one a year because of school issues) This summer she will have her surgery in NY with Dr. Waner.

Elissa
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Elissa Rifkin
VBF Developmental Specialist
psyelectro@aol.com
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