[nickbar]

Not sure if any of this will be helpful...but maybe worth checking out. I don't know enough about insurance...but does your state have resources?

Possible leads: (some are for children's organizations...but they might have adult leads for you)
Shriner's Hospitals
Grange
Philanthropy Guide
Ronald McDonald House Grants
Kiwanis
FACES: The National Craniofacial Association
Children's Chariities of America
Independent Charities of America
CFE Combined Federal Campaign
United Way
State Employee Campaigns
Operation Smile

another idea: is to contact your local media and see if you can get your story covered via article or tv.... many parents have done this in their areas and it has brought a lot of attention to the subject. Maybe it would be possible to coordinate a fundraiser with the media attention?

wish I could tell you more.

Corinne