Hi Clara,
Welcome to the site.
I am Hank 23 with facial PWS/SWS.
There are a lot of people on this site that have never met another person with PWS. I have met several. Some that have PWS worse then me and those that do not. If you would like to see pictures of others with PWS they are in the PWS section in a few posts. One of them is marked "Pictures of PWS". You would have to look thru the pages of the PWS section, it should not be past page 5. If you would like to see pictures of my PWS you can go to my website
www.hankspws.com or click on one of my topics in the PWS section.
Is there any questions about your PWS you would like to ask? We are all here to help you and would be happy to answer any of your questions.
Hope to talk to you soon.
Hank