Re: Klippel-Trenaunay - How important is diagnosis?
Hi. Welcome. My daughter has a facial pws . I know a Mom whose daughter has KT and I am going to try to contact her. I am sure that she can answer all your questions. Are you near Boston? I would definately reccommend that you try to find a Vascular ABnormalities clinic. I can only tell you to follow your instinct. If you feel that something is not quite right, then you need to follow up and see if you are right. You will not have any form of piece of mind until you feel that you have answers and that you have done all that you can for your little one.