Vascular Birthmarks Foundation Forum - View Single Post - Klippel-Trenaunay - How important is diagnosis?
View Single Post
  #3  
Old 08-10-2005, 07:46 AM
juliemn juliemn is offline
Senior Member
 
Join Date: Sep 2004
Posts: 95
Default Re: Klippel-Trenaunay - How important is diagnosis?

Hi Liesbeth,

First of all, welcome.* You have valid concerns about your little girl.* I would definitely seek out a doctor that can either diagnose or clear her of KT.* I'm not sure where you are in SD, but right next door in Minnesota there is a doctor at the Mayo Clinic that works with KT patients.

I know there is sometimes special circumstances with KT affected people that make laser therapy unadvisable.* I'm working on memory of something I've read, but I believe it has something to do with infection and/or cellulitis?* Someone here could probably clarify this better, or I could do a little digging for you.*

Check out these information links.* There, of course is info here at the VBF site, and then there is info here also:
http://www.sturge-weber.com/aboutkt.htm
http://www.k-t.org (Minnesota based support group)
http://ktfoundation.org

Good luck to you!

Julie
(mom to Ben)
jshiggins@earthlink.net
http://home.earthlink.net/~jshiggins/index.html
__________________
Julie H
Mom to Ben (multiple AVM's, PWS, SWS)
www.MeetBen.com
jshiggie@gmail.com
Reply With Quote