Re: 23 yr old female Vascular Malformation or Hemangioma?
I too have a VM, mine is throughout my left elbow(including in the joint) and bit of the forearm.
I had sclerotherapy done with a doctor in Colorado. I found out the depth of it through an MRI, Angiogram and CT Scan.
From what I understand it is NOT always associated with syndrome/illness, but some cases can be painful, as in my case. There are other options other than surgery, which is not the best option due to the fact that they will/can come back wether it be a week,a month,a year.
There is a great site on MSN it's the vascularbirthmarksupport .. I cannot find the complete address but I know if you google it you can find the link and also someone on here might post it. There is a mom from Canada in the ONtario area who son recieves treatment at a hospital in Toronto..hopefully she will see this, but she is also on the MSN site
Hope this helps