Vascular Birthmarks Foundation Forum - View Single Post - LM resection with Dr. Waner
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Old 09-28-2005, 12:11 AM
jacquismom jacquismom is offline
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Join Date: Jul 2005
Location: Oregon
Posts: 16
Default Re: LM resection with Dr. Waner

Hi Nikki -

Sorry it took me so long to get back to you - we have had a really crazy month! I would be happy to answer any questions that I can for you regarding lymphatic malformations as well as any questions that the parents of the child you are taking care of might have. Lymphatic Malformations are quite a bit more rare than hemangiomas so its a little harder to track down information on them.

After making this post, I was contacted by a group of parents on a lymphatic malformation support group on Yahoo. The site is: http://health.groups.yahoo.com/group/lmsupport/ . There are a number of families on this site with children with lymphatic malformations with their stories and even some photo albums (Jacqui has an album on this site too). Many of them have been seen by Dr. Waner for surgery.

This is an excellent resource as well as a very supportive group of parents. I would highly recommend that the family you are working for take a look. I wish we had known about sites like this when Jacqui was first born. There is also a much larger LM support group on MSN at http://groups.msn.com/vascularbirthm...t/general.msnw .

Hope this info is helpful for you and if you have any specific questions, don't hesitate to ask me. I will do my best to track them down for you.

Michelle
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