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  #1  
Old 01-05-2005, 11:11 PM
tweety
 
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Default treetment

[ ;D Hi I'm 16 from canada, I have bin having treetment for abot 12 years now. and boy has it had an afect on my life. people have notist the change treetment brings. just to tell anyone who is getting it for the first time it is a little scary at first but boy is it wwerth it. so if you need any advice just e-mail me at qt_pye71@hotmail.com ;D
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  #2  
Old 01-06-2005, 08:55 PM
eprmo eprmo is offline
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Default Re: treetment

I am glad you feel so encouraged...Where was your H ,and what has been done. I have a 15 year old daughter, who is curently having treatments too.

Elissa
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  #3  
Old 01-07-2005, 12:08 AM
hankbartenbach hankbartenbach is offline
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Location: Nebraska
Posts: 533
Default Re: treetment

Hi tweety,

I am glad you are here. Did you have a hemangeoma, or a Port Wine Stain?

I am 22 years old with PWS. I have done laser treatment for about 14 years off and on. Laser treatment worked in some areas of my PWS, but others are to deep and are not phased by laser treatment. That is why I am seeing Dr. Waner in NY to have get it completely removed woth surgery and am also going to continue lasers treatment.
I know what you mean, about the laser treatment affecting your life. Everybody can tell even people you do not even know.

Once again glad you are here.

Hank
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  #4  
Old 01-08-2005, 07:20 PM
tweety
 
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Default Re: treetment

to Elissa
;D i am cerently at Centenary Hospital, toronto, Ontario i go every 3 months its diffucalt to stay in school but pople ecept me fo how i am. ;D

to Hank
;D i have pws ;D
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  #5  
Old 01-08-2005, 07:32 PM
tweety
 
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Default Re: treetment

;D sorry every one but i have truble remembering so im not 16 im 17ok ;D
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  #6  
Old 01-08-2005, 09:40 PM
hankbartenbach hankbartenbach is offline
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Location: Nebraska
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Default Re: treetment

it happens to all of use from time to time tweety, do not feel bad.

Is your PWS on your face or in a different area?

We would love to here your story. I can not wait to hear it.

Hank
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  #7  
Old 01-12-2005, 09:38 PM
tweety
 
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Default Re: treetment

hank
;D yes it is on my face and 90% of my body ;D
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  #8  
Old 01-12-2005, 10:46 PM
hankbartenbach hankbartenbach is offline
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Default Re: treetment

90% of your body, wow.
I have to friends that have PWS from head to toe, on is 60%, and the other is 75%. Both of them have Sturge-Weber Syndrome. Do you have glacouma, or seizures?
If so, you might want to look into SWS.
I have SWS on the brain.

If you want more info on SWS let me know and I can get some for you.

Hank
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  #9  
Old 01-15-2005, 10:33 PM
tweety
 
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Default Re: treetment

;D yes i have every one of the simptoms of sws but not the brain involvment
and im luky because i have not had a seizure in 1 1/2 years almost nothanks on the info i have lots i was at a convenchon in detroit last summer
;D
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  #10  
Old 08-23-2013, 11:13 AM
suvaratking suvaratking is offline
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Default

http://ibcbetewin.blogspot.com/

http://gentingcrown.blog.com/

http://www.mixscore.com/football-analysis/
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