I would recommend sending an email to Dr. Edmonds with those questions. You can send him an email directly thru the vbf website on the home page.
Ask the Lymphatic Malformation Expert
VBF is proud to announce the addition of an expert who treats Lymphatic Malformations. Ask Dr. Edmonds your questions related to this vascular lesion.
Keep us posted.
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)