Anyone tried Ok-432 injections? - Vascular Birthmarks Foundation Forum
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Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Lymphatic Malformations (also known as cystic hygroma and lymphangioma)

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  #1  
Old 07-10-2008, 04:13 AM
Piercesmom Piercesmom is offline
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Default Anyone tried Ok-432 injections?

Has anyone tried ok-432 injections for their Cystic hygroma. Iowa is doing research on this agent from Japan. Would love to hear if anyone has expierience with it.
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Old 08-07-2008, 03:37 PM
linda6969 linda6969 is offline
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no, heard good things about it though.
Success rate is higher than with surgery. Look up Tessa's Lymphatic Malformation, on the web. Thee are before and after pics.
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Old 08-23-2008, 12:14 AM
tessamom tessamom is offline
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Hello I am Tessa's mom. As to date Tessa has had four surgeries and five injections of OK-432 we know this drug works for Tessa because of the fluid color at each injection. Tessa also is able to tells us that each time a new swelling pops up it is a new LM based on how it feels to her. Email me anytime at wibearmom@yahoo.com
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Old 11-18-2008, 06:38 PM
AJB4TAB AJB4TAB is offline
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My daughter also had the OK-432 injections and it completely took care of her "macro" element. She was very sick after injections, but it really worked well for her. It will not work on the "micros" though, which she also has.
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Old 11-25-2008, 07:33 PM
tessamom tessamom is offline
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Tessa just had her sixth LM injected and she did very well. Any question just email us Lora
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