New here. hemangioma on sons tongue - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  

1994 - 2014 Celebrating 20 years with 75,000 networked into treatment, over 3,000,000 views monthly on our world wide websites, virtual chapters on 6 of the 7 continents in the world, 500 families provided free lodging while seeking a medical opinion or treatment,over 400 conference scholarships awarded, 200 Day of Awareness events, 15 conferences, 12 programs (including our Ask/Accept Anti Bullying Program),10 walk/runs, 6 research projects funded, 4 physician education grants awarded, 4 college scholarships awarded, 3 Galas, and 2 International Missions Trips with over 300 treated by our international team.
Donate to VBF

Go Back   Vascular Birthmarks Foundation Forum > Individuals Living with Birthmarks > Youth and Teen Support

Reply
 
Thread Tools Display Modes
  #1  
Old 05-24-2006, 11:15 PM
troby
 
Posts: n/a
Default New here. hemangioma on sons tongue

Hi. I am Teri. My son Josh is 9. He has a quite large/deep hemangioma on his tongue (into the back of his throat). We have monitored it up until now. It seems to be growing. Went in yesterday for another MRI and the Dr. wants to discuss laser treatment. Has anyone dealt with or seen hemangioma on the tongue? Does laser surgery seem to work in shrinking hemangiomas? It is inside his mouth so my main concern is not cosmetic. If it doesn't go completely away, we are ok with that (i guess). My concern is physical problems (breathing, eating, etc.). Just don't want to see it grow anymore. Anybody have advise? Thank You so much
Reply With Quote
  #2  
Old 05-25-2006, 12:17 AM
hankbartenbach hankbartenbach is offline
Senior Member
 
Join Date: Oct 2002
Location: Nebraska
Posts: 538
Default

Hi troby,

First of all welcome to the group.

I have had laser treatment on my upper gum of my PWS (Port Wine Stain) birthmark with a C02 laser I think. So far it has not been very effective. I think that would be the same laser that the doctor probably would use on the tounge. If so I would not recommend it. I would recommend getting another opinion.

There are a couple things you can do. First, under resource section at the top of this page, do a physican search for a doctor in your area that might specials in birthmarks.

Second, on the front of this website there is a section on the left hand side. I suggest writing a message to the Ask the surgeon Dr. Levintin. This doctor works with Dr. Waner. Both are plastic surgeons, but Dr. Waner is orignally an ENT doctor. If surgery is possible this two doctors would be able to tell you. I have had plastic surgery from them and highly recommend them. They are in the top of either field. Contact info for Dr. Waner is in the same section in the resource page in New York City.

If you need any other info just ask we are all here for you.

Hank
Reply With Quote
  #3  
Old 05-31-2006, 07:51 PM
RVosh
 
Posts: n/a
Default

Hi Teri,
My daughter also had a venous malformation on her tongue and Dr. Waner and Dr. Levitin performed laser treatments on it last summer with fabulous results. My daughter is 20 years old and her tongue continued to get a little larger every year and it started to effect her swallowing and airway. Her tongue was actually much smaller and pinker after the laser treatments. So good luck. We think the world of Dr. Waner, Dr. Levitin and all of his staff.
Reply With Quote
  #4  
Old 09-08-2006, 01:47 AM
blondefairyinphx
 
Posts: n/a
Default my son has hemangioma on lower lip

my son has hem. on lower lip i have tried the laser 3 yrs. ago and thought things would be fine, well there not it came back and its just as big and its getting bigger, and now theres other problems and im trying to find some one to help me because now he will need surgery. he just turned 13 and likes girls but he is afraid that they dont like him because of this, and it hurts me to see my only child go thru this, so if any one has any ideas please let me know...
Reply With Quote
  #5  
Old 09-08-2006, 01:49 AM
blondefairyinphx
 
Posts: n/a
Default

just to let you know that the lsaer is not always the way to go they will probably need several treatments, my son has one on his lower lip and has has laser and now im looking for a surgeon.
Reply With Quote
  #6  
Old 12-01-2006, 12:33 AM
coco3523
 
Posts: n/a
Smile vascular malformation on my tounge

Hi, my name is Courtney and I have (or had ) a venous vascular malformation on my tongue, floor of my mouth and my soft palate (or throat). My hemangioma was monitored for about 12 years by annual MRIs and my doctor consistently wanted to "wait and see" what happened. The MRIs apparently showed no change but it was obvious to the naked eye that my birthmark was growing.
My mom researched and found Dr. Milton Waner (she posted a few posts up) and his co-hort Dr. Levitin and they were honestly the best thing to ever happen to me! They are passionate about their work and love their patients (I feel like I'm their only patient)! I can't say enough good things about them
I started laser treatment with them the summer of 2005 and had a surgery to remove my malformation this past summer. I am having one more laser treatment this summer and can't wait to go see them (even though it means hanving another treatment)! I hope your son is doing well and I 100% recommend calling Dr. Waner's team. They are life savers!
--Courtney
Reply With Quote
  #7  
Old 10-04-2008, 09:09 AM
nitin nitin is offline
Junior Member
 
Join Date: Oct 2008
Posts: 1
Default hello

I am Nitin from India.
I have been going through homeopathic treatment for hemangioma of tongue since 2yrs and couldnt see any improvement.
Its only on thr rite side of my tongue. I dont feel any problem because to it like pain, or speech or eating problem.
If I go for laser or radiotherapy..does it gonna affect my voice?
How can I get rid of this...can't it be totally vanished..like a normal tongue?
Reply With Quote
  #8  
Old 05-03-2010, 04:12 PM
praize praize is offline
Junior Member
 
Join Date: May 2010
Posts: 1
Default son has a hemangioma on his tongue too

Hi! I am so happy to finally find someone else who is dealing with this same situation. We have been dealing with this since he was around six months old when the his pediatric doctor noticed it during a routine visit. We were sent to a specialist who knew exactly what it was and told us to wait to see if it was going to grow. Well before he was four they did a MRI on him and sure enough it had began growing and it was running deeply through his tongue on the left side. He had his first laser treatment before he turned five. As of today he has had a total of 3 laser treatments. The biggest problem we have had that is when it is time to do the treatments again, he will get infections on his tongue. We have never met anyone else with this medical condition. The doctors have always been really nonchalant about it, so I guess we have too. My son is sometimes embarrassed by his tongue but the older he is getting it is not as bad. However, the doctor told us that he probably just have to keep getting these laser treatment or he may be able to just deal with it better when he gets older. He has six brothers and sisters who treat him the same as any other kid. Therefore, I think that has helped him not feel different. I am proud of how well he has done dealing with this hemangioma. The only bad part for us was after each laser treatment he was in a lot of pain. We worried about the swelling after the treatments but he did fine with that too. I am really happy to have someone to share this with because we just learned to deal with it alone. I live in a small town in N.C. and only few doctors could even do the laser treatments when we first found out. So I would love to hear from other's or get more insight about hemangioma's to really explain it better to my son.
Reply With Quote
  #9  
Old 07-07-2011, 09:33 AM
walkershane123 walkershane123 is offline
Junior Member
 
Join Date: Jul 2011
Posts: 2
Default

i am so upset right now cause my baby is getting uncomfortable day by day. i dont know the signs of this deaseas but Can my baby have hemangiomas anywhere else besides on the skin?

Wedding Hairstyles

Last edited by walkershane123 : 09-07-2011 at 10:42 AM.
Reply With Quote
  #10  
Old 07-13-2011, 04:51 PM
nickbar nickbar is offline
Senior Member
 
Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,078
Default

Can you email me or post more details about your baby's condition? Where is the lesion located? How old is she/he? Can you describe what is uncomfortable/where? Other medical issues or problems, i.e. eating/drinking/reflux? Changes you have seen in the lesion?
__________________
Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Hemangioma on tongue lannaf Help and Resources for Hemangiomas 8 01-06-2012 10:15 AM
Successful nasal hemangioma removal la4mara Help and Resources for Hemangiomas 5 06-29-2011 05:06 AM
Lymphatic Malformation of Tongue frustrated dad Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 9 06-13-2008 02:11 PM
matthew hemangioma -he is now over a year old rissnboys Help and Resources for Hemangiomas 2 04-19-2008 11:31 PM
Matthew parotid infantile hemangioma rissnboys Help and Resources for Hemangiomas 2 02-29-2008 03:51 PM