Hello, here's my story. - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Individuals Living with Birthmarks > Adults Living with Birthmarks

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
  #1  
Old 10-10-2006, 01:53 AM
jeri-lee
 
Posts: n/a
Default Hello, here's my story.

Hi there, My name is Jeri-Lee. I live in Calgary,AB and am 28 years old. When i was 15 a lump began to grow on my lower back, sacral area to the left of my spine. It grew, and became inflamed periodically and was slowing me from riding my horse, and lifting heavier objects and many other physical activites. I started seeing a doctor and they immediately told me it was just a Lipoma, which is a benign fatty cyst/tumor. They told me many times that it's not painful, but after several visits to the doctor explaining the pain i was in they sent me to a surgeon to have it removed. Within a year it had come back and i have been seeing doctors for years and no one ever sent me in for an MRI or Ultra sound until a year and a half ago.

No one has seemed to be able to give me a straight answer, until a recent surgeon told me that he does not believe this to be a lipoma, but a Venous Malformation. Which i had never heard of.

I"m going for my third MRI on Jan 3/07, and am hoping they can give me any more information. I"ve been told that if it is infact a venous malformation, surgery will never help it, it will always be there. I don't accecpt this answer and am going to see if i can see another surgeon and get a second opinion as well as visit a naturopathic doctor.

I have extreme emotional attachment to the pain involved with this problem in my back. Being so young, and in so much pain at times is really unfair, and i really hope that this is not going to be with me for the rest of my life.

If anyone has any information on internal venous malformations related to lower back and sacral areas or links to share it would be much appreciated.
Reply With Quote
 


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
My story of living with a Giant Hairy Nevus on my back!! ocongr Living with a birthmark - my story 16 08-08-2014 09:43 AM
My story... sweet pea Living with a birthmark - my story 5 01-04-2010 07:28 AM
Our Baby's Story foxsmom Living with a birthmark - my story 1 06-27-2009 11:02 PM
Jacqui's Story - Life With a Lymphatic Malformation jacquismom Living with a birthmark - my story 4 06-19-2008 09:03 PM
My Story bfull Living with a birthmark - my story 4 05-01-2005 07:18 PM