Lost for answers - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Lymphatic Malformations (also known as cystic hygroma and lymphangioma)

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
  #1  
Old 12-13-2006, 05:16 PM
jsadler
 
Posts: n/a
Default Lost for answers

Hello. I'm new to this board. My name is Julie Sadler and my daughter, Kasey, was born with Lymphatic Malformation of the tongue. She is 7 years old and has had 9 surgeries. She has had 2 done by Dr. Waner. The last one he performed was in March of 2006. The others were done by Dr. Werkhaven at Vanderbilt Children's Hospital in Nashville, TN. Dr. Waner treated us like we were family and made us feel right at home. I told them I wish I could move to NY. I would love to find someone who I could talk to about this that might be older and could kind of tell me what to expect. I know that when she gets sick, it grows. Also, as she grows, it grows. I have also heard that when she starts having harmones it could get worse. I would like to know if it will get more painful. I know that surgery is the only way to take care of it with steroids, but the steroids make her stomach hurt. The doctor has her on all kinds of medicine already to help, but she still hurts. I just would like to talk to someone who can tell me things that I need to know that can help me to help her when she asks questions.
Reply With Quote
 


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump