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Old 04-15-2007, 10:59 PM
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Question PWS Insurance not covered and Removal

Hi, im new to these forums, found them via google.

Anyways, I have a red portwine stain on back and leg thigh/calf. On the back it is like probabley all together I have almost 2x2 ft pws. I use to get red rashes that use to raise little of skin but not for about 6 months now. 2 Dermatogolist took a look at it and didnt know what it was, all they said it wasn't dangerous or something to worry about.

I have I believe Kaiser insurance HMO in California, Bay area. My doctor at kaiser says its cosmetic and he didnt know what it was and sent me to dermatolgy. The 2 dermatoligist at kaiser said it was cosmetic.

I later paid $100 to get a appointment(consultation) at kaiser cosmetic department. The guy who performs the pulse dye laser, said it was cosmetic and insurance doesnt cover it. Also he said it was portwine stain.

The costs for removal were $150 to turn the pulse gun on. And a $1 for every shot. With all the area 1 treatment would probabley be around $1600. And he said maybe it would only take 4-5 treatments he said because it wasnt that dark. Also because it fades to normal color when pressed on.

I am 18yrs old. And the PWS is still growing, in the past year quite abit.

So is there anyway I can file a claim to get insurance to cover for this? Where? How? Would help alot. I would be happy if they cover for at least have of the treatment costs.

After Pulse dye beam can PWS still grow?

What happens to the blood vessels that get destroyed? So I lose blood when I get this pulse treatment?

Any other comments?

ask me if i confused you anywhere. or for more info.

Thanks alot for reading
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Old 04-15-2007, 11:31 PM
momofAddie momofAddie is offline
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Join Date: Apr 2007
Posts: 28
Default Insurance info-help

Sorry, I'm new at this. I posted my reply on the part with my question. Does that make since? Also, do all the research you can on PWS, again it is NOT a cosmetic issue.
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Old 04-16-2007, 10:29 PM
nickbar nickbar is offline
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Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,054


I would encourage you to email Dr. Nelson on our front page. He is the laser expert in treating pws. He is in Irvine Ca. There are non-cosmentic issues that can be considered when appealing to your insurance co. He also can answer all your questions about lasers and how it works.
We have examples of WON appeals on the vb support group on msn. Kaiser being one of them.
Good luck
Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
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