Can someone help me determine (photos) - Vascular Birthmarks Foundation Forum
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  #1  
Old 08-20-2007, 08:09 PM
mom0507 mom0507 is offline
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Default Can someone help me determine (photos)

...what type of birthmarks my baby has?

She has had these from birth, her pediatrician said they are vascular and will likely get bigger until she is 8 months old and then will fade away. The ones on her neck and top of her head have grown slightly, the one on her hand has not changed.
The one on her hand, however, does turn purple when she is cold.

Hsere are the photos, please let me know if her doctor is right or if I should go see a specialist. She is turning 5 months this week...

On her head. This one is raised and has gotten slightly wider and higher since birth. It is smooth and no hair growing on it...


This is the one on her neck. It has red spots, which have diminished slightly in number since birth, but it is very lumpy under the skin and bluish in color. The lumpy part has gotten much bigger and lumpier since birth...


And the one on her right hand. It is right between her index and middle fingers, but also has some spotting on the back of the hand and spreads over slightly onto her palm. This is the one that turns purple in colder weather. I can also make it "disappear" when I press on it and then the blood rushes back into the area when I stop pressing/rubbing...



Thanks in advance for your help and opinions!
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Old 08-20-2007, 08:31 PM
missy missy is offline
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Look here first:

http://birthmark.org/chart.php

that might help.

My totally unprofessional, uneducated, unsmart opinion is that they are hemangiomas. What did they doctor say they were? He is right... if they are indeed hemangiomas, they will go away. The going away part is called "involution." I don't know they will go away that quickly... no one can really predict that.

Has he suggested any treatment options and how old is the baby now?

In this case, "treatment options" might include doing nothing unless they begin to grow very fast. So, if he has said "wait and see" and is continuing to monitor them, that might be OK.

Other parents will chime in soon, probably. Welcome to the board!

Missy
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Old 08-21-2007, 01:58 AM
mom0507 mom0507 is offline
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Thank you Missy!

I did look at that chart before posting here, but I was having a hard time determining which one they were since they each seem different and on the rest of the site the photos of the hemangiomas looked way bigger.

The doctor has pretty much said "wait and see" and she is 5 months old.
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Old 08-21-2007, 08:19 PM
pichpaw pichpaw is offline
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The hemangioma on your daughter's head is EXACTLY like the one (same size too) on my son's face next to his eye. He is just over 4 months. We saw a specialist and have decided to have surgery done to remove it. It's a personal decision but I did a lot of research and when I learned that 50% of these go away by age 5 and 90% by age 9 I decided that was too long to wait due to teasing, etc. You can have these removed by a plastic surgeon or can "wait and see". (The other marks I am not sure about, but the scalp one looks clear cut to me.)

Also I believe that some doctors say that if your child has 4 or more hemangiomas (assuming the other 3 are) that they are supposed to have an MRI to be sure they don't have internal hemangiomas for ex. on the liver. I would look into that just to be safe.

Good luck.

Zoe

Last edited by pichpaw : 08-21-2007 at 08:21 PM. Reason: added something
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Old 08-26-2007, 03:51 PM
mom0507 mom0507 is offline
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Quote:
Originally Posted by pichpaw View Post
The hemangioma on your daughter's head is EXACTLY like the one (same size too) on my son's face next to his eye. He is just over 4 months. We saw a specialist and have decided to have surgery done to remove it. It's a personal decision but I did a lot of research and when I learned that 50% of these go away by age 5 and 90% by age 9 I decided that was too long to wait due to teasing, etc. You can have these removed by a plastic surgeon or can "wait and see". (The other marks I am not sure about, but the scalp one looks clear cut to me.)

Also I believe that some doctors say that if your child has 4 or more hemangiomas (assuming the other 3 are) that they are supposed to have an MRI to be sure they don't have internal hemangiomas for ex. on the liver. I would look into that just to be safe.

Good luck.

Zoe
Thank you for your input. She only has 3, maybe you are thinking 4 because I posted 2 of the one on her hand. That is a scary thought though. I'll have to look into that a little more.
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Old 08-26-2007, 08:05 PM
pichpaw pichpaw is offline
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ooops sorry. hope i didn't cause any undue alarm! i wish you the very best.
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Old 08-26-2007, 11:49 PM
mom0507 mom0507 is offline
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Quote:
Originally Posted by pichpaw View Post
ooops sorry. hope i didn't cause any undue alarm! i wish you the very best.
No, no, please don't feel bad. I'm glad you mentioned that because I was thinking they were nothing, and I know they still can be. But, I'd rather be safe than sorry. So I am glad you mentioned about the possibility of internal hemangiomas because I'm doing some more research and am starting to think I do need to get a second opinion. I am not over worried, just have my antennae up now. Thanks for your input, really!
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Old 08-27-2007, 02:22 PM
mom0507 mom0507 is offline
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Just wanted to update. I contacted a specialist and emailed him the same above pics. He confirmed that they are all hemangiomas and should be evaluated. The earliest appt we could book was for October 2nd.

Thanks for all your help. I would have waited things out since I didn't know much about these birthmarks. I just want to make sure my baby is OK otherwise. Thanks again!
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Old 08-27-2007, 05:18 PM
missy missy is offline
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Oh, good! Glad to hear you are going to a specialist. Even if no treatment is needed right away, it's good to become a patient of a specialist in case treatment is needed down the road.

Let us know how things turn out!

Missy
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  #10  
Old 10-03-2007, 01:33 AM
mom0507 mom0507 is offline
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Today was the day of Jaelyn's specialist appt. Doc took a look at all of them. He was not concerned about the ones on her head and hand unless they bleed on the outside. They do not. However, when he saw the one on her neck/throat, the biggest one, he was concerned. He said he can't tell by looking at it whether it was a hemangioma or the cousin of one. And because it is so large, he thinks it's worth having it examined further. This would involve a team of different types of doctors called a "vascular clinic" who would examine her, take pictures and run tests like an MRI to make sure that it is indeed superficial and not interfering with anything internal. Oh and he did mention about her being at very high risk of having internal hemangiomas because she has three visible ones - so likely she will have a full-body MRI done.
The one on her neck is called a "cavernous hemangioma" because it grows under the skin. And that's if it is a hemangioma - I don't know what the "cousin" he mentioned is called or what the dangers are, if any.

So the "wait and see" game continues. I have to call a dermatologist he referred me to in the morning to see about this "vascular clinic" and schedule an appt.

Oh and this month I was going to give my notice in about quitting in November so I can be a stay-at-home-mom, but because I'm the one with insurance, I have to stay on this job until Jaelyn is in the clear. I don't know how long all this will take. If hubby found a job with health insurance it wouldn't make a difference because this would be considered a "pre-existing" condition, so Jaelyn would not be covered. Thus the reason I have to stick around a little longer. Of course, she is worth it.
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