My son is now 19 and his lip avm is now a cheek avm, despite the best efforts of Drs. Waner and Berenstein, who are great drs. We are trying to decide what to do now. Waner still thinks embolization plus surgery will give permanent good result, but that it what we thought last time too. Embolization alone gave good result but too short term (not even a couple of months before it started to grow again.) Any advice appreciated.
Its been a while since this thread. Just wondering how are the children/young adults doing now with the avm?
I have a 3 year old boy who has an avm involving ear, cheek, lip and tongue. They just look like red (blush) birthmarks now. I am frightened to start treating it (embolization and laser) due to the possible vascularization but also frightened to leave it alone due to the vessels enlarging and becoming harder to treat.
hi,I am a 22-year-old Italian girl.Iíve been suffering from a venous malformation of the lower lip and cheek since I was born. It spans also in the pharynx deeply.
A sclerotherapy treatment is what every doctor suggested me and I underwent to it several times, with very few results. However, my sclerotherapies were irregular, due to the long waiting lists. The situation became psychologically untenable for me and i would like to know if anyone has solved a similar problem. I am very demoralized. Thank you so much
An international charitable
organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate medical professionals for evaluation and/or treatment,
provides informational resources as well as sponsors physician education, mobilizes medical missions trips, and supports research and programs that promote acceptance
for individuals with birthmarks.
Here you will find information and resources for patients and families affected by hemangioma, port wine stain,
arteriovenous malformation, capillary malformation, lymphatic malformation, Sturge Weber syndrome, Klippel-Trenaunay syndrome, and any other type of vascular birthmark
Information accessed through the VBF is presented in summary form
in order to impart general information relating to the diagnosis
and treatment of vascular birthmarks. Such information is not complete
and should not be used as a substitute for a consultation or visit
with your physician or other health care provider. Information accessed
through VBF website is not exhaustive and does not cover every aspect
of vascular birthmarks. VBF makes no warranty as to the information's
completeness, reliability or accuracy. Should you have any health
care related questions regarding this matter, please see your physician
or other health care provider promptly.
Information accessed through the VBF website is provided "AS
IS" and without warranty, express or implied. All implied warranties
of merchantability and fitness for a particular use or purpose are
hereby excluded. VBF shall not be liable under any theory or indemnity.
In no event shall VBF be liable for any damages, direct or indirect,
and all other damages, direct or indirect, special, incidental,
consequential or punitive, are hereby excluded even if VBF has been
advised of the possibility of such damages.