5 yr old son Venous Malformation-Amputation
I am new to this forum. My son is 5 years old and has been a patient at Texas Children's Hospital in Houston,Tx for the past 3 years. He has a venous malformation in his right knee area which extends up into the thigh to below his knee. He has had 6 treatments of scelerotherapy. I met with a team of specialists on Monday to review his case because the scelero is not working. His mass is getting larger and he is in much more pain. So, at the meeting on Monday that his only option now is amputation of his right leg. I was shocked, you could imagine. Has anyone ever heard of them wanting to amputate because of a venous malformation?...I have contacted Boston's Children's Hospital to make a appt for a 2nd opinion. Do any of you guys have any other suggestions?