Segmental H - Vascular Birthmarks Foundation Forum
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Old 02-20-2008, 08:35 PM
lo1 lo1 is offline
Join Date: Oct 2007
Location: Scotland, UK
Posts: 31
Default Segmental H

Hi my daughter has finally been seen by a specialist who has diagnosed her with a Segmental H on her eye/head - I cant seem to find much info. on this type - does it go away like most other types of H (steroid therapy has not worked), is it more dangerous?

Any information appreciated!

Lo x
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Old 02-21-2008, 03:31 AM
nickbar nickbar is offline
Senior Member
Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,078

Hello, my son had a segmental hemangioma of the right side of his face/head, ear, eyelid. Segmental h. will involute, but often will leave atrophied skin. Steroids did work for my son early on (he started them at 6 weeks old and finished in 12 weeks). We then went on to laser tx. 8 total. It is very very hard to tell he ever had a b-mark before. If you have more questions I would be happy to go into more detail via email or a post.

how old is your child?

Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
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Old 02-21-2008, 07:27 PM
lo1 lo1 is offline
Join Date: Oct 2007
Location: Scotland, UK
Posts: 31

Thanks for your reply. My daughter is 8 months old and is provisionally booked in for eyelid surgery in May, but this is only to debulk the eyelid so she can see. We dont want to rush into laser at the moment but may do in the future.
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