lymaphatic malformations on tongue, neck, cheeks attaching to muscle and bone - Vascular Birthmarks Foundation Forum
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Old 06-06-2008, 11:31 PM
sunsheyen69 sunsheyen69 is offline
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Join Date: Jun 2008
Posts: 1
Default lymaphatic malformations on tongue, neck, cheeks attaching to muscle and bone

Hi. I'm new to this group and glad to finally find some other people
that may have problems like my son. I have a 2 1/2 year old son that
was diagnosed with cystic hygroma in his cheeks when he was almost 1.
He recently had a new MRI and it is also in his upper neck and tongue
now. The doctors also said that the cheeks tissue is attaching itself
to his muscle and bone in his face. We are trying to find adequate
treatment for him because it changes everything now with it being in
his neck and mouth. Does anyone have any similar experience with this
and have you ever heard of it attaching to the muscle and bone? Just
hoping someone could shed some light on the subject. He's being seen
at St. Louis Hospital right now. We're up on the MO/IA border. Thanks
Sarah
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