Anyone tried Ok-432 injections? - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  

1994 - 2014 Celebrating 20 years with 75,000 networked into treatment, over 3,000,000 views monthly on our world wide websites, virtual chapters on 6 of the 7 continents in the world, 500 families provided free lodging while seeking a medical opinion or treatment,over 400 conference scholarships awarded, 200 Day of Awareness events, 15 conferences, 12 programs (including our Ask/Accept Anti Bullying Program),10 walk/runs, 6 research projects funded, 4 physician education grants awarded, 4 college scholarships awarded, 3 Galas, and 2 International Missions Trips with over 300 treated by our international team.
Donate to VBF

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Lymphatic Malformations (also known as cystic hygroma and lymphangioma)

Reply
 
Thread Tools Display Modes
  #1  
Old 07-10-2008, 04:13 AM
Piercesmom Piercesmom is offline
Junior Member
 
Join Date: Jul 2008
Location: Arkansas
Posts: 2
Default Anyone tried Ok-432 injections?

Has anyone tried ok-432 injections for their Cystic hygroma. Iowa is doing research on this agent from Japan. Would love to hear if anyone has expierience with it.
Reply With Quote
  #2  
Old 08-07-2008, 03:37 PM
linda6969 linda6969 is offline
Junior Member
 
Join Date: Aug 2008
Posts: 6
Default

no, heard good things about it though.
Success rate is higher than with surgery. Look up Tessa's Lymphatic Malformation, on the web. Thee are before and after pics.
Reply With Quote
  #3  
Old 08-23-2008, 12:14 AM
tessamom tessamom is offline
Junior Member
 
Join Date: Aug 2008
Location: Southwest Wisconsin
Posts: 5
Default

Hello I am Tessa's mom. As to date Tessa has had four surgeries and five injections of OK-432 we know this drug works for Tessa because of the fluid color at each injection. Tessa also is able to tells us that each time a new swelling pops up it is a new LM based on how it feels to her. Email me anytime at wibearmom@yahoo.com
Reply With Quote
  #4  
Old 11-18-2008, 06:38 PM
AJB4TAB AJB4TAB is offline
Junior Member
 
Join Date: Nov 2008
Location: Tremonton, UT
Posts: 1
Default

My daughter also had the OK-432 injections and it completely took care of her "macro" element. She was very sick after injections, but it really worked well for her. It will not work on the "micros" though, which she also has.
Reply With Quote
  #5  
Old 11-25-2008, 07:33 PM
tessamom tessamom is offline
Junior Member
 
Join Date: Aug 2008
Location: Southwest Wisconsin
Posts: 5
Default

Tessa just had her sixth LM injected and she did very well. Any question just email us Lora
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Steroid injections Pratts Help and Resources for Hemangiomas 2 10-06-2008 01:09 AM